It's been since August! How have you been? I never really thought I'd update again but here we go...
On Thursday evening, I noticed a change in my hearing in my RIGHT ear (currently with a hearing aid) it sounded like there was fluid in there that all the sounds were "dense" so immediately I thought it was the hearing aid as they are getting a little old- so I did what I knew how to do...I changed the tubing checked all the small crevices for dirt/grime/moisture/etc. and there was no change. I went to bed that night betting my hearing will be fine in the morning. Woke up and my hearing was still "acting up". So I went to work and I e-mailed anyone and everyone I know who knows about sudden hearing loss. Audiologist, a parent I work with who works for ENT dept at Mayo.. I was told to come in right away.
FLASH BACK: When the hearing in my left ear deteriorated to the point of qualifying for a CI it started out exactly like this- except that time I just went to urgent care in town. There, though they didn't see any fluid and I had no fever, I was diagnosed (TWICE) with an ear infection and sent home with medicine. This is where self-advocacy comes in... since I knew something was up that my hearing still was weird I called an audiology dept in the area directly and they got me in quickly and everything from then on was a diagnosed hearing loss.
BACK TO THE PRESENT: On Friday, I went in and prayed the whole drive there, things have been so stressful I didn't need this to add to my plate. I'm also unsure how much insurance will cover but that's the least of my worries right now. The funny thing is, the parent I work with called at 9:30 and said she could get me in at 10:30...it's about a 50 minute drive so I essentially RAN out of work, told people to get me a sub and made sure my students were still covered- OFFDAH I have great co-workers.
So the results of my hearing test were that all of my hearing levels have decreased 5-15dbs...which is a lot for someone who already has a significant hearing loss. My word recognition fell from 26% to 10% (in the aided ear). I'm currently on Steroids in hopes to bring the hearing that I lost back.
Emotionally: I'm feeling alright with it- extremely frustrated and sad as I feel I'm losing a part of me (again that's my emotional side- my logical side knows better than that). I have been saying I'd definitely get another CI as the one I have has been so amazing...but really? I didn't really want to HAVE to get one- I'd rather elect to have one when I'm ready. I'm not saying I'm qualified in the right ear yet, but only time will tell!
Optimistic points throughout all this: I have great people in my life who are willing to help me every chance I get. A huge shout out to the person who helped get me in right away at the Audiologist...you are AMAZING!
Saturday, April 14, 2012
Tuesday, August 23, 2011
1 year post op
I had my 1 year follow up with the audiologist today and it went very well.
She shared with me that I "bring up the average" because my hearing has improved drastically from my pre-implant days. I'll try to explain it so follow along carefully:
The average adult who receives a Cochlear Implant (CI) needs "normal" conversation amplified about 16dbs (decibels) above the background noise (fans, wind, other conversations). The average adult with "normal" hearing hears conversation at -2.5dbs. PRE surgery I needed amplification at 19.5dbs and NOW with only the CI I only need it amplified around 4.5dbs and with BOTH hearing aid and CI I got 2dbs. for the average CI user they hear about 7dbs. So... I'm bringing up the curve- I need to be the "nerd" somewhere!
All I can REALLY tell you is that this is a good thing. A very. good. thing.
Bittersweet news of today was that I may not qualify for a CI just yet in my right ear. The reason for this is I still receive benefit from my hearing aid. I'm ok with this- actually this is good news, my hearing still works "well enough." My scores were high enough to be right "on the line" of whether or not it would be more beneficial to have a CI or not in my right ear. The audiologist reassured me that I'm young, I still benefit from the hearing aid and there will be more technological advances in the future. I also do not have to go back for another year... yay!
Wanna hear something way cool? The Audiologist saw at a conference that AB (my CI brand) is coming out with a WATER RESISTANT PROCESSOR(the thing I wear on my head)!!!!!!!!! How awesome is that? for FULL SUBMERSION under WATER... wow... I could swim AND hear at the same time? that's pretty amazing!
That's all I have for today- luckily, it's good news :)
Loves!
She shared with me that I "bring up the average" because my hearing has improved drastically from my pre-implant days. I'll try to explain it so follow along carefully:
The average adult who receives a Cochlear Implant (CI) needs "normal" conversation amplified about 16dbs (decibels) above the background noise (fans, wind, other conversations). The average adult with "normal" hearing hears conversation at -2.5dbs. PRE surgery I needed amplification at 19.5dbs and NOW with only the CI I only need it amplified around 4.5dbs and with BOTH hearing aid and CI I got 2dbs. for the average CI user they hear about 7dbs. So... I'm bringing up the curve- I need to be the "nerd" somewhere!
All I can REALLY tell you is that this is a good thing. A very. good. thing.
Bittersweet news of today was that I may not qualify for a CI just yet in my right ear. The reason for this is I still receive benefit from my hearing aid. I'm ok with this- actually this is good news, my hearing still works "well enough." My scores were high enough to be right "on the line" of whether or not it would be more beneficial to have a CI or not in my right ear. The audiologist reassured me that I'm young, I still benefit from the hearing aid and there will be more technological advances in the future. I also do not have to go back for another year... yay!
Wanna hear something way cool? The Audiologist saw at a conference that AB (my CI brand) is coming out with a WATER RESISTANT PROCESSOR(the thing I wear on my head)!!!!!!!!! How awesome is that? for FULL SUBMERSION under WATER... wow... I could swim AND hear at the same time? that's pretty amazing!
That's all I have for today- luckily, it's good news :)
Loves!
Sunday, August 14, 2011
Whew!
What a year this has been!
I don't really have much to update you on, but I've tentatively decided to get the other ear done with a CI... we shall see though- I meet with my audiologist on Aug. 23rd and I'll chat with her about it some more. I'm also starting a new job with a new district closer to home therefore, new insurance. So this is a toss up as neither of my insurance options are as great as my previous district, but I'm hoping it's a "necessary procedure" or "preventative" or whatever silly words insurance companies like to throw out there and that it'll be covered as it costs a pretty penny ;) or a pretty arm and a leg- however you look at it!
One annoying thing about having a cochlear implant- when you're laying down and a dog jumps on your head and the magnet disconnects during a great (Sugarland) song. Speaking from experience of course. For those of you who don't know, the magnet connection is basically what turns on and off the sound to my auditory nerve.
I have also discovered that my magnet likes to disconnect if my head gets too close to the car when I jump in, literally it sticks the the car- kind of fun actually. To my dismay, only SOME regular magnets stick to my head- but that still makes me cooler than most of my friends as NO magnets stick to theirs ;) (I kid, I kid).
Josh (husband) and I went hiking up in Northern MN and wanted to find the magnetic rock to see if my magnet would be attracted to it- unfortunately it was not a well mapped or groomed trail and it looked like rain so we turned around before we got there. Rain and I (and my hearing equipment) are not the best of friends.
**Also-this is a biggie-
Music sounds better and better everyday. Sometimes when I look back on my (AWESOME) Wedding, I'm saddened that I couldn't hear/decipher hardly ANY songs. So now, when I go to wedding receptions I just sit and thoroughly enjoy the music. Amazing.
Well that's all I have to share for now! Take care lovelies!
I don't really have much to update you on, but I've tentatively decided to get the other ear done with a CI... we shall see though- I meet with my audiologist on Aug. 23rd and I'll chat with her about it some more. I'm also starting a new job with a new district closer to home therefore, new insurance. So this is a toss up as neither of my insurance options are as great as my previous district, but I'm hoping it's a "necessary procedure" or "preventative" or whatever silly words insurance companies like to throw out there and that it'll be covered as it costs a pretty penny ;) or a pretty arm and a leg- however you look at it!
One annoying thing about having a cochlear implant- when you're laying down and a dog jumps on your head and the magnet disconnects during a great (Sugarland) song. Speaking from experience of course. For those of you who don't know, the magnet connection is basically what turns on and off the sound to my auditory nerve.
I have also discovered that my magnet likes to disconnect if my head gets too close to the car when I jump in, literally it sticks the the car- kind of fun actually. To my dismay, only SOME regular magnets stick to my head- but that still makes me cooler than most of my friends as NO magnets stick to theirs ;) (I kid, I kid).
Josh (husband) and I went hiking up in Northern MN and wanted to find the magnetic rock to see if my magnet would be attracted to it- unfortunately it was not a well mapped or groomed trail and it looked like rain so we turned around before we got there. Rain and I (and my hearing equipment) are not the best of friends.
**Also-this is a biggie-
Music sounds better and better everyday. Sometimes when I look back on my (AWESOME) Wedding, I'm saddened that I couldn't hear/decipher hardly ANY songs. So now, when I go to wedding receptions I just sit and thoroughly enjoy the music. Amazing.
Well that's all I have to share for now! Take care lovelies!
Saturday, August 13, 2011
Happy One Year to my Bionic Self!!
It's amazing what one year can do to change your life. Since August 13, 2010 I've been so blessed. More to come later- I'm off to an Irish Fest!
Saturday, July 16, 2011
Extreme Heat Warning
"Avoid strenuous activities..." *Will do!
"drink lots of fluids" aka- frequent bathroom visits
"Could feel like 100-115degrees here" ...sick...
By the way- I have one window air unit, so I'm sure I'll be hanging out there ;)
anyway...
It's been almost a year since I've been implanted and there has been a TON of changes. I'm learning more lyrics to songs just by listening to them rather than looking them up online. I realized this after getting the new Blake Shelton CD from a girlfriend of mine! Thanks girly!
Up until yesterday I've been wearing "moleskin" on the backs of my sunglasses because with the scaring I had after the surgery the skin was pretty sensitive. "Moleskin" is made by Dr. Scholls (sp?) and is FABULOUS! Highly recommended if you have any sensitive areas due to rubbing (ideal for shoes).
Another difference I've noticed is that I'm more comfortable on the phone- I still get nervous if I have to make a phone call but I'm slowly getting over it; I may even have enough "bravery" to call the gym I still pay membership dues to and haven't gone to in over a year (pathetic, I know). That's just one example of how much using the phone was torture for me prior to the surgery until now. So... YAY big steps!
One more thing: headbands... cute accessories but where the implant is situated typical headbands won't fit very comfortably- probably the fashion god's way of telling me not to wear headbands, they just don't work.
That is all for now! CIAO!
"drink lots of fluids" aka- frequent bathroom visits
"Could feel like 100-115degrees here" ...sick...
By the way- I have one window air unit, so I'm sure I'll be hanging out there ;)
anyway...
It's been almost a year since I've been implanted and there has been a TON of changes. I'm learning more lyrics to songs just by listening to them rather than looking them up online. I realized this after getting the new Blake Shelton CD from a girlfriend of mine! Thanks girly!
Up until yesterday I've been wearing "moleskin" on the backs of my sunglasses because with the scaring I had after the surgery the skin was pretty sensitive. "Moleskin" is made by Dr. Scholls (sp?) and is FABULOUS! Highly recommended if you have any sensitive areas due to rubbing (ideal for shoes).
Another difference I've noticed is that I'm more comfortable on the phone- I still get nervous if I have to make a phone call but I'm slowly getting over it; I may even have enough "bravery" to call the gym I still pay membership dues to and haven't gone to in over a year (pathetic, I know). That's just one example of how much using the phone was torture for me prior to the surgery until now. So... YAY big steps!
One more thing: headbands... cute accessories but where the implant is situated typical headbands won't fit very comfortably- probably the fashion god's way of telling me not to wear headbands, they just don't work.
That is all for now! CIAO!
Saturday, April 9, 2011
Some long time later
Hello faithful followers,
It's a very stormy night, which freaks my nightly-deaf self out as it's supposed to get severe with potential tornadoes and such! Oh well, my THREE (yes, 3 dogs now) are sleeping soundly to the sound of wind, thunder and HEAVY rain- I thought I'd update. So here goes!
I have been BLESSED with the cochlear implant, I have had many compliments on how well I've been hearing (and listening!) I find myself relying so much on the CI rather than my hearing aid, I feel like I'm missing so much when I'm not wearing my CI! I can't even speak specifics of what new sounds that I am hearing- one VERY annoying noise- keys, I have come to HATE wearing my keys on my belt loop while at work, which leads me to misplace them from time to time! Goodness. I ALSO hate the sound of drawers opening and closing, especially the ones in my kitchen- just too loud. I go in next week for another programming and audio appointment- I like doing those- I feel smart when I can repeat words back to the audie (Audiologist). If my dizziness stuff that I was tested for before the actual implant looks all good in August (my 1 year follow up) I would consider getting a 2nd one. But that's a ways out yet, so I'm not even thinking about it yet!
On a not-so-happy note, I've been suffering from migraines, I highly doubt from the CI but one thing I notice with the migraines is the sensitivity to sound... whoda' thunk that I, the girl-once-known- as Andrea Johnson, would be sensitive to sound? Kind of ironic. :) But in a weird way, I like it.
Back to the CI for a moment, the hair has basically all grown back and it's thicker- more coarse than it was before, which causes some unruly cowlicks and flips all crazy-like... but it's ok- it's a new (bionic) me! :)
Thanks for following me! :D
It's a very stormy night, which freaks my nightly-deaf self out as it's supposed to get severe with potential tornadoes and such! Oh well, my THREE (yes, 3 dogs now) are sleeping soundly to the sound of wind, thunder and HEAVY rain- I thought I'd update. So here goes!
I have been BLESSED with the cochlear implant, I have had many compliments on how well I've been hearing (and listening!) I find myself relying so much on the CI rather than my hearing aid, I feel like I'm missing so much when I'm not wearing my CI! I can't even speak specifics of what new sounds that I am hearing- one VERY annoying noise- keys, I have come to HATE wearing my keys on my belt loop while at work, which leads me to misplace them from time to time! Goodness. I ALSO hate the sound of drawers opening and closing, especially the ones in my kitchen- just too loud. I go in next week for another programming and audio appointment- I like doing those- I feel smart when I can repeat words back to the audie (Audiologist). If my dizziness stuff that I was tested for before the actual implant looks all good in August (my 1 year follow up) I would consider getting a 2nd one. But that's a ways out yet, so I'm not even thinking about it yet!
On a not-so-happy note, I've been suffering from migraines, I highly doubt from the CI but one thing I notice with the migraines is the sensitivity to sound... whoda' thunk that I, the girl-once-known- as Andrea Johnson, would be sensitive to sound? Kind of ironic. :) But in a weird way, I like it.
Back to the CI for a moment, the hair has basically all grown back and it's thicker- more coarse than it was before, which causes some unruly cowlicks and flips all crazy-like... but it's ok- it's a new (bionic) me! :)
Thanks for following me! :D
Wednesday, November 24, 2010
One month later!
Hello all! I just want to give a shout out to Kristin S. as she keeps hasslin' me to update this blog- so thank her for this update!
I was just in for some hearing tests and speech testing on the 19th and let me tell you, it was pretty amazing. With the CI alone, I could hear like 86% phonemes (Parts of the words) and 60 some% of whole words (in quiet)- my audiologist was quite impressed "tremendous progress" she noted! With BOTH the hearing aid and the CI I heard 98% of sentences correctly in quiet... "in quiet" means just that- no background noise which isn't entirely realistic but still a HUGE difference from pre-CI! So quite exciting. I also have a new setting on my CI to use the phone... I haven't tried it yet- she recommends using it with a landline and call people who I know well (their voice anyway) I don't have a landline- apparently if you have a data plan on your cell phone (which I do) it could mess with the frequencies and all that fun stuff.
Today I'm setting up my IPOD on my computer to start downloading books from a local library- this should help me with my word recognition- kind of like studying for the collegiate type.
On a semi-side note: There has been a voluntary recall on my implant because 2 people have had shocks, pain and loud noises about 10 days post operation... I'm not concerned about it- I still trust Advanced Bionics and I'm impressed that they are having a voluntary recall after 2 people have had issues, this tells me that they care about ME as a recipient.
Anyway, thank you ALL for your thoughts, prayers and cards throughout this whole process it's been quite a ride!
Have a great Thanksgiving and stay safe!
I was just in for some hearing tests and speech testing on the 19th and let me tell you, it was pretty amazing. With the CI alone, I could hear like 86% phonemes (Parts of the words) and 60 some% of whole words (in quiet)- my audiologist was quite impressed "tremendous progress" she noted! With BOTH the hearing aid and the CI I heard 98% of sentences correctly in quiet... "in quiet" means just that- no background noise which isn't entirely realistic but still a HUGE difference from pre-CI! So quite exciting. I also have a new setting on my CI to use the phone... I haven't tried it yet- she recommends using it with a landline and call people who I know well (their voice anyway) I don't have a landline- apparently if you have a data plan on your cell phone (which I do) it could mess with the frequencies and all that fun stuff.
Today I'm setting up my IPOD on my computer to start downloading books from a local library- this should help me with my word recognition- kind of like studying for the collegiate type.
On a semi-side note: There has been a voluntary recall on my implant because 2 people have had shocks, pain and loud noises about 10 days post operation... I'm not concerned about it- I still trust Advanced Bionics and I'm impressed that they are having a voluntary recall after 2 people have had issues, this tells me that they care about ME as a recipient.
Anyway, thank you ALL for your thoughts, prayers and cards throughout this whole process it's been quite a ride!
Have a great Thanksgiving and stay safe!
Wednesday, October 20, 2010
hair flair
Hey friends!
Welcome back... it's been awhile- hope life is treating you well! No real "big" news today however, I took a big step myself and wore my hair up TWICE this week. Granted I went to work with my hair down and shortly after lunch I would put it up since I was hot and it was annoying me. It took some courage to do that, but I just thought to myself "if someone cares enough to comment, I'll care enough to kick their butts" Just kidding, but really if I got a rude comment, I could send someone to ISS (In School Suspension) yes, I have "some power." In all actuality, I wouldn't hear if they DID make a comment so really... who cares!?
I've sample different colors on my processor (purple, green, blue and orange) Purple is BY FAR my favorite! :) Someday, I'll "skin it" meaning use the website (skinit.com maybe??) and design my very OWN stickers for it- who knows what I'll do... it'll be spur of the moment.
Hearing has been going GREAT! I'm very excited to put it on in the morning and sad to take it off at night. Wearing only my hearing aid I cannot hear the clicking of the keyboard as I type, if I had my processor on I could- it would probably be an annoyance!
I go in for another "speech test" appointment (2 hours) in the middle of Nov. sometime, I'm excited!
Have a great short while- 'til we meet again
:)
Welcome back... it's been awhile- hope life is treating you well! No real "big" news today however, I took a big step myself and wore my hair up TWICE this week. Granted I went to work with my hair down and shortly after lunch I would put it up since I was hot and it was annoying me. It took some courage to do that, but I just thought to myself "if someone cares enough to comment, I'll care enough to kick their butts" Just kidding, but really if I got a rude comment, I could send someone to ISS (In School Suspension) yes, I have "some power." In all actuality, I wouldn't hear if they DID make a comment so really... who cares!?
I've sample different colors on my processor (purple, green, blue and orange) Purple is BY FAR my favorite! :) Someday, I'll "skin it" meaning use the website (skinit.com maybe??) and design my very OWN stickers for it- who knows what I'll do... it'll be spur of the moment.
Hearing has been going GREAT! I'm very excited to put it on in the morning and sad to take it off at night. Wearing only my hearing aid I cannot hear the clicking of the keyboard as I type, if I had my processor on I could- it would probably be an annoyance!
I go in for another "speech test" appointment (2 hours) in the middle of Nov. sometime, I'm excited!
Have a great short while- 'til we meet again
:)
Sunday, September 26, 2010
Jiminy Crickets!
Crickets are quite an annoyance- I've heard them before, don't get me wrong, but seriously- they are pretty constant. Now, in the last few (COLD) days I haven't heard much of them and for that I am thankful!
I went to the Audiologist just over a week ago and had a few tweaks- and it has been AMAZING since then! Before the appt. I was hearing a continuous high squeal which gave me headaches and after... IF I hear a squeal it's a lot more "dull" and more of a background noise! I was SO excited and happy after this appt. and had no one to share this news with and hug (Josh was sleeping, others were at work) that I went to Target and used up a gift card I've kept in my wallet- I felt like a little school girl with a new toy!
I am continually getting used to all the "news" of having a CI- wearing the processor, connecting the magnet, new hairstyles, dead batteries- it's all still very, very new. The next on my "CI to do list" is to listen to an IPOD through a "direct connection" where I plug my IPOD right into my processor (basically my head). My Audiologist warned me that I do NOT have a surge protector and that it should only be used on battery powered things (laptops, portable DVD players, basically anything with a headphone jack). How ridiculous would it be to be using a plugged in laptop and get a sudden jolt in a place I don't want to be jolted! BLECH!
Wearing the processor is slowly but surely becoming more noticeable for me as it's more heavy than my hearing aid was and MUCH more cumbersome. I have also noticed a lot more itching at the scar site and where the device is located under the skin and that get's annoying as when I itch it I typically knock the whole device off the side of my head! I've been looking at a "body worn aid" which would be completely worn OFF the ear, how nice would that be? But I'm not sure where the microphones would sit then if I had that, so I'm just exploring all options!
:) Til next time!
I went to the Audiologist just over a week ago and had a few tweaks- and it has been AMAZING since then! Before the appt. I was hearing a continuous high squeal which gave me headaches and after... IF I hear a squeal it's a lot more "dull" and more of a background noise! I was SO excited and happy after this appt. and had no one to share this news with and hug (Josh was sleeping, others were at work) that I went to Target and used up a gift card I've kept in my wallet- I felt like a little school girl with a new toy!
I am continually getting used to all the "news" of having a CI- wearing the processor, connecting the magnet, new hairstyles, dead batteries- it's all still very, very new. The next on my "CI to do list" is to listen to an IPOD through a "direct connection" where I plug my IPOD right into my processor (basically my head). My Audiologist warned me that I do NOT have a surge protector and that it should only be used on battery powered things (laptops, portable DVD players, basically anything with a headphone jack). How ridiculous would it be to be using a plugged in laptop and get a sudden jolt in a place I don't want to be jolted! BLECH!
Wearing the processor is slowly but surely becoming more noticeable for me as it's more heavy than my hearing aid was and MUCH more cumbersome. I have also noticed a lot more itching at the scar site and where the device is located under the skin and that get's annoying as when I itch it I typically knock the whole device off the side of my head! I've been looking at a "body worn aid" which would be completely worn OFF the ear, how nice would that be? But I'm not sure where the microphones would sit then if I had that, so I'm just exploring all options!
:) Til next time!
Thursday, September 9, 2010
New sounds!
Hello all,
it's been awhile! Hope September has been treating you well with the start to the school year and cooler weather! I have had many ups and downs and twists and turns over the last couple of weeks, my job has started (I teach) and that has helped me learn more sounds! here is a list of some "new" sounds I now have
-crickets (I thought they only made noise at night while sitting around a campfire NOT during the daylight!)
-Ticking of a clock (A "soft tick" as a friend described"
-me typing a text message on my cell phone
-a timer alarm clock
-Jingle of my dogs tags
I haven't heard much of speech sounds yet, but I'm sure that's to come!
My next "mapping" is on the 17th! So I'll get even more "power" to my CI!
it's been awhile! Hope September has been treating you well with the start to the school year and cooler weather! I have had many ups and downs and twists and turns over the last couple of weeks, my job has started (I teach) and that has helped me learn more sounds! here is a list of some "new" sounds I now have
-crickets (I thought they only made noise at night while sitting around a campfire NOT during the daylight!)
-Ticking of a clock (A "soft tick" as a friend described"
-me typing a text message on my cell phone
-a timer alarm clock
-Jingle of my dogs tags
I haven't heard much of speech sounds yet, but I'm sure that's to come!
My next "mapping" is on the 17th! So I'll get even more "power" to my CI!
Sunday, August 29, 2010
No title for this one
Since the surgery/ activation I've noticed I'm a lot more sensitive when it comes to deaf jokes- when I had hearing aids it took me until sophomore/jr year of College to become ok with the jokes- which are funny I do have to admit. so NOW that my hearing in my left ear is completely gone- it's difficult to accept it. I miss out on A LOT more than I did in the past, which is unfortunate as I am such a social person. People have been good to me and very understanding but I can understand their frustrations in having to repeat themselves more than one time.
So there you have it, I'm a lot more sensitive nowadays- a lot more frustrated and moody....
but ALL in ALL I remain optimistic :) This was a good move and I do not regret surgery for a minute!
So there you have it, I'm a lot more sensitive nowadays- a lot more frustrated and moody....
but ALL in ALL I remain optimistic :) This was a good move and I do not regret surgery for a minute!
Activate!
Thursday, August 26 I finally got my device "processor" (or CI from here on out). So I met with the Audiologist and she gave me my whole kit (LOTS of stuff) I got 2 of everything so I have a backup when needed- it's quite the setup and it's taking a bit to get used to.
As for sound, I knew going into this NOT to expect any miracles- and a miracle I did not get. As of now (3 days post activation) I continue to hear a high pitched sound- it's consistent and quite a bit annoying. I still remain optimistic, they say it takes about 6 months to a year to really know if it worked or not.
That's my brief update, next will be more of an emotional one. :D
As for sound, I knew going into this NOT to expect any miracles- and a miracle I did not get. As of now (3 days post activation) I continue to hear a high pitched sound- it's consistent and quite a bit annoying. I still remain optimistic, they say it takes about 6 months to a year to really know if it worked or not.
That's my brief update, next will be more of an emotional one. :D
Tuesday, August 17, 2010
Post Surgery!
Hey all,
sorry I didn't write any sooner, my computer has this new "thing" it likes to die and be REALLY slow... so I don't like to use it.
Surgery went well, took longer than expected but went very well, I did stay over at the hospital and hardly slept- it's annoying, they make you wear these leg things that puff up to help your circulation, but I'm glad I stayed for the anti nausea meds and such. Recovery is going slow, well I feel better so I guess it's not too slow. Other than a brief trip to the local ER for anti nausea meds and fluids on Friday night/ early Saturday morning I've been lucky, little to no dizziness or ringing in my ears- today I feel headache-y and my ear hurts. I'm able to get up and down the stairs on my own and eat! My appetite is pretty small now and I've lost up to 8 or so pounds but I'm sure I"m gaining that back too so thats GREAT!
So far I've watched 2 seasons of the Big Bang Theory (AWESOME show) and I'm almost through the 3rd season of the Office.
Nap time before bed time!
:)
sorry I didn't write any sooner, my computer has this new "thing" it likes to die and be REALLY slow... so I don't like to use it.
Surgery went well, took longer than expected but went very well, I did stay over at the hospital and hardly slept- it's annoying, they make you wear these leg things that puff up to help your circulation, but I'm glad I stayed for the anti nausea meds and such. Recovery is going slow, well I feel better so I guess it's not too slow. Other than a brief trip to the local ER for anti nausea meds and fluids on Friday night/ early Saturday morning I've been lucky, little to no dizziness or ringing in my ears- today I feel headache-y and my ear hurts. I'm able to get up and down the stairs on my own and eat! My appetite is pretty small now and I've lost up to 8 or so pounds but I'm sure I"m gaining that back too so thats GREAT!
So far I've watched 2 seasons of the Big Bang Theory (AWESOME show) and I'm almost through the 3rd season of the Office.
Nap time before bed time!
:)
Tuesday, August 3, 2010
Reality
So... reality is starting to sink in- and I"m having a lot of anxiety. The typical response is "it'll go just fine" or "thats understandable" but I don't know how to tolerate it other than keeping busy. I picked up hours at my summer job and I'm hitting up school a couple of times this week so I can prepare my classroom and the stuff I NEED at the beginning of the year so the week or so after my surgery I can have NO worries. HA yeah right- I worry all the time, but that's another battle for another time!
Reality REALLY sunk in when I read someone's facebook status on Sunday referring to it being August. WOW. August- really? and then today my lovely cousin and co-worker asked "is your surgery next week" and I said "no it's the 12th... wait... that IS next week" ...super... I'm excited, yet apprehensive. The whole "surgery" thing on my HEAD is causing some "background stress" in my life that is definitely showing through in my everyday life... i.e. I'm crabby. But I try to do my best at covering it up! :)
There's my semi-emotional rant for you!
Reality REALLY sunk in when I read someone's facebook status on Sunday referring to it being August. WOW. August- really? and then today my lovely cousin and co-worker asked "is your surgery next week" and I said "no it's the 12th... wait... that IS next week" ...super... I'm excited, yet apprehensive. The whole "surgery" thing on my HEAD is causing some "background stress" in my life that is definitely showing through in my everyday life... i.e. I'm crabby. But I try to do my best at covering it up! :)
There's my semi-emotional rant for you!
Thursday, July 29, 2010
Finally an Update!
Hey all! Thanks for checking in again!
Yesterday Josh and I spent a good 8.5-9 hours at Mayo Clinic. I had 4 appointments I think so I'll just go through my day- bear (bare?) with me, I just may ramble!
We started off the day leaving home at 6:15am after very little sleep for the both of us! I had the MRI first- all is well in my head, my nerve are intact, the cochlea looks "healthy" so it's all still a go!
I had other appts. where I selected the brand and color of my implant and headpiece- I chose Advanced Bionics- Harmony. Drs. assured me that I could not go wrong in making the CI choice as they recommend all of them equally. The AB's (Advanced Bionics) do not come with a remote but you can change settings manually or have it be automatic. Pros and Cons to all brands. OH and the color- I picked the blackish "charcoal" color- it makes the color accents (Blue, orange, purple, maroon, red, etc.) stand out more and I like that! I can also get stickers made through a website so I can make the device as funky as I want! ....we'll see...
Next I had to NOT eat for awhile and then take a balance test- this was interesting to say the very least... I had to sit in a chair- get strapped in and wear goggles that blocked out all light and had a camera on my eyes. This was about 10 minutes long, the chair spun around (slowly-ish, and rocked a little back and forth- it was to measure my balance system (inner ear). This test showed "some damage to the left ear balance system" ...interesting
Then we went to another room with some minor computer glitches that ended up being resolved- easy test... wore crazy goggles and followed a little red light- what was the most interesting was the WATER TEST... yes they used water- I HAVE to share about this test. First the Aud. sprays hot water into one ear to "stimulate the inner ear" makes you VERY dizzy- and after the spraying is done you have to think outloud- so I counted backwards by 2's, came up with boys names in ABC order and girls names in ABC order as well as counting by 3s or something... anyway- I had to wear darkening goggles again and lay on a table, it was QUITE a sensation. When he sprayed my LEFT ear I didn't really feel dizzy at all, but when he sprayed my RIGHT ear I was CRAZY busy!
-The results of the test told me that I have 87% LESS balance function in my left ear than my right. Basically my whole balance system is reliant on my RIGHT ear. There is no telling when the damage to my balance system occurred but it makes sense that it happened from the meningitis. -I'm not a clutz, I have a damaged balance system!- :D
The last appt. was the "pre-operative" meeting with the Dr. doing the surgery. We talked about how it might be more risky to do the Right ear in the future due to the higher risk of balance issues (any disruptions may make me have a lot of balance issues) so we're sticking with the left ear for sure, and the right ear as a POSSIBILITY in the future but really only if the Left ear implant does not work like it should.
So to make a LONG blog even LONGER... Surgery is August 12th, unknown what time yet as I have to call the night before. Left ear only- Sweet colors.
OH and my "Switch on date" (the day I start actually using the device) is August 26 (and 27th!) so right in time for a good friend's wedding (and the start of the school year)! WOOT!
Thats the update- I like you! Have a good day!
Yesterday Josh and I spent a good 8.5-9 hours at Mayo Clinic. I had 4 appointments I think so I'll just go through my day- bear (bare?) with me, I just may ramble!
We started off the day leaving home at 6:15am after very little sleep for the both of us! I had the MRI first- all is well in my head, my nerve are intact, the cochlea looks "healthy" so it's all still a go!
I had other appts. where I selected the brand and color of my implant and headpiece- I chose Advanced Bionics- Harmony. Drs. assured me that I could not go wrong in making the CI choice as they recommend all of them equally. The AB's (Advanced Bionics) do not come with a remote but you can change settings manually or have it be automatic. Pros and Cons to all brands. OH and the color- I picked the blackish "charcoal" color- it makes the color accents (Blue, orange, purple, maroon, red, etc.) stand out more and I like that! I can also get stickers made through a website so I can make the device as funky as I want! ....we'll see...
Next I had to NOT eat for awhile and then take a balance test- this was interesting to say the very least... I had to sit in a chair- get strapped in and wear goggles that blocked out all light and had a camera on my eyes. This was about 10 minutes long, the chair spun around (slowly-ish, and rocked a little back and forth- it was to measure my balance system (inner ear). This test showed "some damage to the left ear balance system" ...interesting
Then we went to another room with some minor computer glitches that ended up being resolved- easy test... wore crazy goggles and followed a little red light- what was the most interesting was the WATER TEST... yes they used water- I HAVE to share about this test. First the Aud. sprays hot water into one ear to "stimulate the inner ear" makes you VERY dizzy- and after the spraying is done you have to think outloud- so I counted backwards by 2's, came up with boys names in ABC order and girls names in ABC order as well as counting by 3s or something... anyway- I had to wear darkening goggles again and lay on a table, it was QUITE a sensation. When he sprayed my LEFT ear I didn't really feel dizzy at all, but when he sprayed my RIGHT ear I was CRAZY busy!
-The results of the test told me that I have 87% LESS balance function in my left ear than my right. Basically my whole balance system is reliant on my RIGHT ear. There is no telling when the damage to my balance system occurred but it makes sense that it happened from the meningitis. -I'm not a clutz, I have a damaged balance system!- :D
The last appt. was the "pre-operative" meeting with the Dr. doing the surgery. We talked about how it might be more risky to do the Right ear in the future due to the higher risk of balance issues (any disruptions may make me have a lot of balance issues) so we're sticking with the left ear for sure, and the right ear as a POSSIBILITY in the future but really only if the Left ear implant does not work like it should.
So to make a LONG blog even LONGER... Surgery is August 12th, unknown what time yet as I have to call the night before. Left ear only- Sweet colors.
OH and my "Switch on date" (the day I start actually using the device) is August 26 (and 27th!) so right in time for a good friend's wedding (and the start of the school year)! WOOT!
Thats the update- I like you! Have a good day!
Thursday, June 24, 2010
surgery description
This will be pretty basic- from my memory of what my surgery will entail- it could have "wrong information" but it's whats in my head right now... yeah that basic ;)
Getting a Cochlear Implant (CI for short) it's a relatively easy surgery that takes about 1-3 hours and I would be considered an "outpatient," now that's where a large majority of the anxiety sets in, being "put under" when I had my wisdom teeth out and was "under" for 10 minutes I did NOT like the feeling afterwards... or the vomiting or the shakes/ shivers. ANYWAY, the surgery is just a small incision on my scalp just behind and a little up from my left ear- they put the "computer chip" there resting on my skull under the skin, they then put a TEENY TINY electrode (Actually I think there are several on there) into my cochlea which is the size of a pea and resembles a snail shell. I have full trust in the surgeon and am not afraid of the SURGERY part just everything surrounding it. Also, with this surgery there is no guarantee that it'll work well and due to the electrodes into the cochlea it'll damage any residual hearing I actually do have. - so thats a risk I'm willing to take.
Getting a Cochlear Implant (CI for short) it's a relatively easy surgery that takes about 1-3 hours and I would be considered an "outpatient," now that's where a large majority of the anxiety sets in, being "put under" when I had my wisdom teeth out and was "under" for 10 minutes I did NOT like the feeling afterwards... or the vomiting or the shakes/ shivers. ANYWAY, the surgery is just a small incision on my scalp just behind and a little up from my left ear- they put the "computer chip" there resting on my skull under the skin, they then put a TEENY TINY electrode (Actually I think there are several on there) into my cochlea which is the size of a pea and resembles a snail shell. I have full trust in the surgeon and am not afraid of the SURGERY part just everything surrounding it. Also, with this surgery there is no guarantee that it'll work well and due to the electrodes into the cochlea it'll damage any residual hearing I actually do have. - so thats a risk I'm willing to take.
Planning=anxiety
Hey all!
The surgery date is set August 12th! I was hoping for sooner to guarantee that I could start back to school on time but on the 12th might be cutting it close. It just may be too overwhelming to re-train my brain to hear in a short amount of time. People have told me that they have great success and can return to some form of normalcy within days of the surgery. Now, I'll be deaf for the recovery period (2-4 weeks) and then I get "switched on" thats where I get completely hooked up- and start re-learning to hear. They say people sound a lot like "mickey mouse" or some mechanical voice, but given time it gets better. I've been told I won't even need to lip read anymore... it's really up to me to give that up though, it's a GREAT evesdropping tool ;)
I've been having a lot of "ups and downs' and of course this all coincides with buying a new house, planning a wedding, GOING THROUGH with the wedding ;) starting a new summer job, then the appointments leading up to the wedding... it's pretty ridiculous- Josh is marrying into my new medical bills- lucky him! So the anxiety is really surrounding the surgery, not the wedding- that will all fall into place even if a lot of people ask me lots of questions that I don't care to answer more than once- that might be the teacher in me. Believe it or not, I've found I have little patience apparently! :) Who'da' thunk it?!
Anyway, that is a little emotional update for you all... :) it's a crazy experience to say the least I'm sure many of you have had made decisions similar to this- it's weird to think that at 24 I need a CI, or hearing aids in general? Isn't hearing loss for "old people?" just kidding. but really that thought has crossed my mind SEVERAL times throughout the years!
The next post will be more about the surgery for those of you who don't know much about it.
The surgery date is set August 12th! I was hoping for sooner to guarantee that I could start back to school on time but on the 12th might be cutting it close. It just may be too overwhelming to re-train my brain to hear in a short amount of time. People have told me that they have great success and can return to some form of normalcy within days of the surgery. Now, I'll be deaf for the recovery period (2-4 weeks) and then I get "switched on" thats where I get completely hooked up- and start re-learning to hear. They say people sound a lot like "mickey mouse" or some mechanical voice, but given time it gets better. I've been told I won't even need to lip read anymore... it's really up to me to give that up though, it's a GREAT evesdropping tool ;)
I've been having a lot of "ups and downs' and of course this all coincides with buying a new house, planning a wedding, GOING THROUGH with the wedding ;) starting a new summer job, then the appointments leading up to the wedding... it's pretty ridiculous- Josh is marrying into my new medical bills- lucky him! So the anxiety is really surrounding the surgery, not the wedding- that will all fall into place even if a lot of people ask me lots of questions that I don't care to answer more than once- that might be the teacher in me. Believe it or not, I've found I have little patience apparently! :) Who'da' thunk it?!
Anyway, that is a little emotional update for you all... :) it's a crazy experience to say the least I'm sure many of you have had made decisions similar to this- it's weird to think that at 24 I need a CI, or hearing aids in general? Isn't hearing loss for "old people?" just kidding. but really that thought has crossed my mind SEVERAL times throughout the years!
The next post will be more about the surgery for those of you who don't know much about it.
Sunday, June 13, 2010
OFFICIAL
It's official. I qualify for a Cochlear Implant (CI) for both ears. It was slightly sketchy on whether or not I would qualify due to my testing. Separately my ears are horrible. I scored a 0% word recognition score in my LEFT ear and a 22% in my RIGHT ear, but together I scored about a 50%. but in the end I qualify and to make a long story short, yes I want to get one, yes I'm nervous and excited. I could get it as early as the end of July. How exciting is that? I shouldn't have to miss any work! Be a personal attendant in a wedding towards the end of July, and then be well enough to be a bridesmaid by the end of August and start school soon after that!
My medical evals and things have been through Mayo, I have gotten really excellent care there! :)
My medical evals and things have been through Mayo, I have gotten really excellent care there! :)
Sunday, May 30, 2010
Here's a little bit I read from Josh Swiller's writing "Wall of Sound" in the New York Times- (Swiller is Deaf who has a Cochlear Implant)
I read this following Passage and thought "EXACTLY IT" it explains what it's like to rely on lip reading and still only understanding 70% of conversations (without lip-reading I currently understand no more than 35% of words read to me in isolation- a 1:1 setting WITH lip-reading I bet I'm about 50-70% depending on the situation)
"What's 70 percent like? It's hard work. It's always hearing the laughter but rarely catching the joke. One-on-one you can hear pretty well, but big gatherings -- high school parties, say -- are just noise falling on top of noise, like ocean waves in a storm. So you develop techniques to feign understanding, limit embarrassment and somehow stay afloat -- the smile-and-nod, the thoughtful lip purse, the "Oh, I have to talk to that guy; great to see you, though." (I didn't learn until years later that this is how everyone, hearing or not, gets through high school.)"
it's finally put into words for me. *sigh*
I read this following Passage and thought "EXACTLY IT" it explains what it's like to rely on lip reading and still only understanding 70% of conversations (without lip-reading I currently understand no more than 35% of words read to me in isolation- a 1:1 setting WITH lip-reading I bet I'm about 50-70% depending on the situation)
"What's 70 percent like? It's hard work. It's always hearing the laughter but rarely catching the joke. One-on-one you can hear pretty well, but big gatherings -- high school parties, say -- are just noise falling on top of noise, like ocean waves in a storm. So you develop techniques to feign understanding, limit embarrassment and somehow stay afloat -- the smile-and-nod, the thoughtful lip purse, the "Oh, I have to talk to that guy; great to see you, though." (I didn't learn until years later that this is how everyone, hearing or not, gets through high school.)"
it's finally put into words for me. *sigh*
Saturday, May 29, 2010
to do list update
_XX_ Buy a house
____ Plan a wedding
____ Move out of my parents house
____ Get checked out for a CI (evaluated)
____ start a new summer job
____ freak out over extracurriculars at work
____ end the school year on a positive note
One thing done! *WHEW*
____ Plan a wedding
____ Move out of my parents house
____ Get checked out for a CI (evaluated)
____ start a new summer job
____ freak out over extracurriculars at work
____ end the school year on a positive note
One thing done! *WHEW*
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